Rare Disease Day 2022 Date, Theme, History, Significance, Importance, Awareness Activities: Rare Disease Day is on the last day of February every year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on the lives of patients.
Established by the European Organization for Rare Diseases, the first Rare Disease Day was observed in 2008 on 29 February. A “rare” date that occurs only once every four years. Since then, Rare Disease Day has been the last day of February, a month known for having rare days. It is February 28, Rare Disease Day. With so many things going on in the world around us, it’s all too easy to avoid important things like health. So every year on the last day of February we mark our calendars to bring awareness to rare diseases.
Significance, and Importance
The biggest problem with rare diseases is that they are not curable and treatment is also very expensive. Diagnosis is also a challenge given the variety of rare diseases and the multitude of symptoms they display. A disease that affects a relatively small number of people compared to other diseases is called a rare disease. In Europe, a disease that occurs in less than 1 in 2,000 people is called a rare disease. Paradoxically, rare diseases individually affect only a handful of people worldwide.
Awareness Activities, and More
Creating awareness about rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for most rare diseases. Thousands of events have taken place every year since its inception, from races and walk to art exhibitions and workshops. These events are organized to capture the attention of policymakers and inspire change in the community. The days leading up to Rare Disease Day include other policy-related events in many places, such as a reception in the British Parliament where policymakers meet with individuals with rare diseases and equitable access to and availability of prevention, diagnosis, treatment. discuss issues such as rehabilitation.